List of demands: We are and we demand! Campaign
15 mars 2018
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- Ceci est une traduction des revendications de la campagne Nous sommes et nous voulons! L’accès aux services, une question d’autonomie!
We are and we demand!
List of demands
The organizations and groups signing below present the following demands in the framework of the 2018-2019 campaign We are and we demand! We request that our demands be implemented in the health and social services.
1) General Principles
- The health and social services must be universal, accessible, free and given uniformly in all the regions of the Quebec province and received without delays;
- The social services, which include the programs regarding disability, must be supported adequately (for example by preserving the budgets of the rehabilitation centers) and must not be relegated on the second plan to the profit of curative care and hospital-centrism;
- The funding of the programs and services must be based on the true needs of the persons with disabilities and their families in a perspective of autonomy;
- The principle of equitable compensation of the costs relative to disabilities must be applied in all the policies regarding persons with disabilities and their families;
- An adequate and uniform information regarding all the programs and services to which persons with disabilities have a right to must be accessible, available and distributed in all circumstances;
- Continuing training on handicap and the multiple disabilities must be given to the integrity of professionals of the health and social services;
- The principles of universal accessibility must be applied and respected in the integrity of the Health and Social Services Network on an architectural level, for the medical equipment and for the communications;
- The information of the possible pleas and the access to the complaints’ procedures must include adaptive measures for persons with disabilities and their families;
- In a perspective of constant improvement, mechanisms of evaluation of the needs and the quality of services must be implemented;
- The service provision must be based on prevention and in an approach of continuity of providing care instead of an intervention based on episodes of services;
- In a perspective of inclusion and social participation, shadowing services must be supported financially by the Health and Social Services Network;
- In a perspective of prevention and solidarity, the natural caregivers must be recognized more easily and be better supported financially by the State;
- Service provision by the public Network must be maintained and not transferred to the private sector which involves a price scale of the services, nor should it be given for cheaper by the community sector.
- List of demands
We demand the end of compressions and a major reinvestment in the health and social services, in the objective of ending waiting lists, answering the needs of all individuals with an intellectual deficiency, on the autism spectrum disorder or with a physical disability and their families on the same level in all the regions of Quebec:
A. Rehabilitation:
- That an outreach staff from the Network be attributed to the person’s case in a perspective of stability;
- That a specialized individual plan be respected and reassessed according to the evolution of the state of the person;
- A fast access to specialized and super-specialized services: early childhood stimulation, occupational therapy, physiotherapy, speech therapy, audiology, etc.
B. Housing
- Increase in the diversity of types of housing (intermediate resource, family type resource, non-profit organization);
- Adequate rehabilitation services and adequate support;
- A better clinical training of the workers;
- Increase of the control of quality of services and of the guidance support from the Network.
C. Home support
- Respect of the choice of the person to stay at home;
- That the responsibility of the Network be maintained in the distribution of daily living support and domestic help services;
- That all home support services be free;
- The end of the cuts in hours distributed and of the sprinkling of services to all users without taking into account their needs (and, as a consequence, reestablishment of the hours that had been removed);
- To recognize the specific needs of persons with disabilities in terms of home-support (distinctively to those of the elderly);
- Complete evaluation of the needs of each user including the global needs, with social participation as the main objective;
- Increase of the control of quality of services and the guidance support from the Network of the services given by community and private resources;
- Improvement of the work conditions and continuing training of auxiliaries and attendants working in the services of home support with people with disabilities.
D. Family support
- That the program be revised in a way to respond to the needs of all the families (end the waiting lists);
- The program must be equitable and uniform in all regions;
- Increase of the budgets allotted to each family;
- Increase in the autonomy of families in the administration of the money allotted;
- Increase in the funding of the respites, sitting and emergency temporary care services;
- Increase in the access of psychosocial services.
E. Socio-professional activities
- That the day activities offered in rehabilitation centers be maintained and reinforced (workshops, internships, socio-cultural training, recreational activities, etc.);
- Increase in the pay allotted to the participants.
F. Early childhood (see rehabilitation)
- Immediate access to services for the diagnosis when the demand is formulated;
- Immediate access to specialized and super-specialized services: early stimulation, occupational therapy, physiotherapy, speech therapy, audiology, etc.
G. Technical aids and elimination supplies
- Free-choice of the persons concerning the supplies and aids needed;
- Broadening and harmonizing of the programs in a perspective of covering the needs of all people;
- Putting in effect measures so that the budgets dedicated be respected.
Signing organizations et groups:
- Mouvement des personnes handicapées pour l’accès aux services
- Alliance des communautés culturelles pour l’égalité dans la santé et les services sociaux (ACCESSS)
- Alliance du personnel professionnel et technique de la santé et des services sociaux (APTS)
- L’arche-Montréal
- Action des femmes handicapées (Montréal)
- Association des personnes handicapées Action Chaleurs (APHAC)
- Association des personnes handicapées de Bellechasse
- Association des Personnes Handicapées Matawinie
- Association des personnes vivant avec une surdité de Laval
- Association lavalloise pour la déficience intellectuelle et le trouble du spectre de l’autisme (ALEDIA)
- Association multiethnique pour l’intégration des personnes handicapées
- Association québécoise des infirmières et infirmiers (AQII)
- Association québécoise pour l’intégration sociale (AQIS)
- Association régionale de loisirs pour personnes handicapées des Laurentides
- Association du Syndrôme de Usher du Québec
- Atelier formation socioprofessionnelle de la Petite-Nation
- Autisme Montréal
- L’autre fabrik
- Carrefour d’éducation populaire de Pointe-Saint-Charles
- Centre au puits
- Centre de la communauté sourde du Montréal métropolitain (CCSMM)
- Centre communautaire Radisson
- Club ALinK
- Coalition Autisme Québec
- Collectif boycottons les entreprises sans cœur
- Comité d’action de personnes vivant des situations de handicap (CAPVISH)
- Comité régional des associations pour la déficience intellectuelle (CRADI)
- Comité des usagers du CRDITED de Montréal
- Compagnons de Montréal
- Confédération des organismes de personnes handicapées du Québec (COPHAN)
- Conseil central du Montréal métropolitain-CSN
- Corporation L’Espoir
- Dynamique des handicapés de Granby et région
- L’Étoile de Pacho
- Ex aequo
- Fédération des mouvements personne d’abord du Québec (FMPDAQ)
- Front d’action populaire en réaménagement urbain (FRAPPRU)
- La Gang à Rambrou
- J’me fais une place en garderie
- Main Forte
- La Maison Marguerite de Montréal
- Maison Répit Oasis
- Médecins québécois pour le régime public (MQRP)
- Moelle épinière et motricité Québec (MÉMO-QC)
- Mouvement Personnes d’Abord du Québec Métropolitain
- Mouvement Personnes d’Abord de Ste-Thérèse
- Parents jusqu’au bout
- Parents pour la déficience intellectuelle
- Parents pour toujours
- Parrainage civique Montréal
- Promotion handicap Estrie
- Promotion intervention en milieu ouvert (PIMO)
- Regroupement des aidantes et aidants naturels de Montréal (RAANM)
- Regroupement des activistes pour l’inclusion au Québec (RAPLIQ)
- Regroupement des aidants naturels du Québec (RANQ)
- Regroupement des associations de personnes traumatisées craniocérébrales du Québec
- Regroupement des Associations de Personnes Handicapées Région Chaudière-Appalaches (RAPHRCA)
- Regroupement des aveugles et amblyopes du Montréal métropolitain
- Regroupement intersectoriel des organismes communautaires de Montréal
- Regroupement des organismes communautaires famille de Montréal (ROCFM)
- Regroupement des organismes de promotion des personnes handicapées de Laval
- Regroupement Pour la Trisomie 21 (RT21)
- Regroupement québécois du parrainage civique
- Regroupement des Usagers du Transport Adapté et accessible de l’île de Montréal (RUTA Montréal)
- Réseau d’action des femmes en santé et services sociaux (RAFSSS)
- Réseau d’aide aux personnes seules et itinérantes de Montréal (RAPSIM)
- Réseau québécois de l’action communautaire autonome (RQ-ACA)
- Rêvanous
- Sans oublier le sourire
- Section Montréal de la Société canadienne de la sclérose en plaques
- Section du Québec de la Société canadienne de la sclérose en plaques
- Solidarité de parents de personnes handicapées
- Table régionale des centres de femmes Montréal métropolitain-Laval